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The long-term accessibility of Cancer Registry data

The seventh training webinar of the eArchiving Initiative series will explore the use of Content Information Type Specification (CITS) eHealth2 guidelines, to support the long-term accessibility of Cancer Registry data.

The long-term accessibility of Cancer Registry data

The webinar examines how stakeholders interested in keeping and preserving cancer registry’s exports (e.g. cancer registries, international aggregators, research organisations, academia, and archives) can use Content Information Type Specifications (CITS), eHealth2 guidelines and specifications to support long-term accessibility and re-use of the exported data.

Cancer is the second leading cause of death in the modern world. Data from population-based cancer registries are used for various purposes, including clinical research, assessing cancer burden, identifying risk factors, evaluating cancer control programmes, and verifying the effectiveness of treatment methods. By making this data more widely available, we can improve our understanding of cancer and its management.

The training webinar will take place on Thursday 18 January 2024, 10.00–11.00 CET. It will be jointly  hosted by the Archives of the Republic of Slovenia (Anja Paulič and Jože Škofljanec) and the Slovenian Cancer Registry (Vesna Zadnik and Tina Žagar), with the contribution of the European Commission’s Joint Research Centre (Joanna Bartnicka).

Practical information about the webinar will be provided once the participant is registered.