The DGA creates the right conditions for individuals and companies that when they share their data voluntarily for the benefit of society, it will be handled by trusted organisations based on EU values and principles. These organisations that make relevant data available based on data altruism will be able to register as ‘data altruism organisations recognised in the Union’.
These entities must have a not-for-profit character and meet transparency requirements as well as offer specific safeguards to protect the rights and interests of citizens and companies who share their data. In addition, they must comply with the rulebook which will lay down information requirements, technical and security requirements, communication roadmaps and recommendations on interoperability standards. The rulebook will be developed by the Commission, in close cooperation with data altruism organisations and other relevant stakeholders.
Individuals and companies now have the tools to give their consent or permission to make their generated data available – voluntarily and without reward – to be used for objectives of general interest. Such data has enormous potential to advance research and develop better products and services, including in the fields of health, environment, and mobility.
This page maintains a public register of all recognised data altruism organisations offering their services in the European Union.
Member States will notify the Commission as and when data altruism organisations are registered. The Member States should use these forms available in English and in all EU official languages. The data altruism organisations will appear per country in the table below.
Recognised data altruism organisations notified by Member States